Sylvia Roozen, PhD

Secretary General of the International Federation for Spina Bifida and Hydrocephalu


  Dr. Sylvia Roozen is Secretary General of the International Federation for Spina Bifida and Hydrocephalus, based in Brussels. With extensive experience in the non-profit sector, she leads global efforts to support the Spina Bifida and Hydrocephalus Community. She works closely with WHO and UN bodies on health, nutrition, and disability and played a key role in the adoption of WHA Resolution 76.19 on food fortification, advancing maternal health, health literacy, and human rights. She also collaborates with IF members, leading global partners and academic institutions to promote inclusive health policies and disability rights worldwide